Category Archives: Walking

WELCOME SUMMER

Today I woke up and felt a rush of energy as I realized it was the first day of summer. This is the longest day of the year and I have only been waiting for 9 months for this day to come.  I do love autumn as well so maybe 6 months is more like it but either way it is here.  My body enjoys the heat and humidity and I often tell people that my 3 favorite H’s are hazy, hot and humid.  Most people don’t believe me when I tell them but the reality is that our bodies and lungs like a little moisture in the air and my body in particular craves this weather and needs this warmth.  I can start to back off my Raynaud’s medications in the summer as my body is able to have more warmth and I spend more time outside getting vitamin D, as well as I just spend more time in the fresh air living life.

I rode in the Tour de Cure on June 11th and although it was 92 degrees I was ready to ride.  Tour de Cure is a ride for diabetes and even though I do not have diabetes, Type I diabetes is an autoimmune disease.  My thought is that any research done towards autoimmune disease is a win for the whole autoimmune community. The heavy hitters are Diabetes, Crones, Celiac, and MS.  As they come up with new equipment, medication and science based research for these autoimmune diseases they are likely to come up with some for other diseases.  I don’t know how much if any time, research, money and attention is given to MCTD but benefits are reaped when they can figure out what causes this disease.

Back to the ride, yes it was 92 degrees but we were riding along the ocean and the breeze was amazing.  I rode the 50K and at the end of this 50K I was ready to climb off that bike.  How does a body dealing with MCTD hold up under those circumstances? Let me start by saying I wear full biking gloves with a lot of padding in my palms.  I try to really relax my breathing and my mind before the ride although I did feel a little anxious at the start.  700 riders all take off together and for the first part I’m navigating other riders and drivers, but at the 7mile mark there is a rest stop and I keep going while everyone stops for a rest. This allows me time on the road with nature, quiet and myself to find my rhythm.  I’m not strong rider so the stronger ones leave the rest stop and catch up to me and maybe even pass depending on how strong they are, but I keep my pace.  I try and shake out my hands as often as I can and keep breathing steady.  At mile marker 26 my feet were completely dead, couldn’t feel them at all and needed to give them a break so on the next down hill I lifted off the seat and sat back behind the seat right in myhips and glutes, this allowed me lift my feet off my sneaker and give my toe pad a rest.  After that I was ready to go again, but my hands have almost no feeling left shifting gears becomes a challenge.  At the mile 32.3 or 50K there is a steep uphill to finish and I dropped my chain shifting to hard on the gears but I completely lost all working function of my hands.  I had crossed the fnish line and my chipped registered I was back from the ride and my husband came right down, helped me off my bike and walked it for me.  I had finished the ride with pride and was eager to eat a huge lunch.  A ride like that takes me 2 hours and 20minutes or an average of 14mph.  No records, but it is a ride not a race and I do it because I can.

There may come a time in my life when I am not able to do what I want when I want and if it comes I will deal with but right now even though I haven’t been feeling all that good since March I’m still able to dig deep and do what I need, what I want and do it when I want.  I did a lot of yoga after to stretch out and felt great the next day.  It did however take me 5 full days to get back on the bike but for those 5 days I was doing what I love which is walking and yoga.  I literally could and do walk every day and do my yoga when I can and still teach.  I would say all in all I’m doing well and waiting to see what this summer brings for fun, joy, and even good challenges.

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WINTER BLUES

It has been a rough winter, both physically and emotionally.  I finally got back on the road to health after my encounters with a few flares and now I reside at 40 days without flare-up. A far cry from where I was but I have to meet myself where I am right now. I teach this in all my yoga classes since every time someone walks into the studio they need to climb on their mat as though they are climbing on for the first time without judgement or expectation.  I’m in a place in my health where I need to take my own advice and meet me where I am without judgement or expectation.  What worked for me a year ago or even a few months ago may not be what will work for me going forward.  This is where I start over and re-evaluate my health and my approach.

One of my goals is to go back to basics and work on doing the best I can every day with what my body has to offer. This means a lot of walking again, keeping up my daily yoga practice and teaching, some spinning, very little weight training (only due to the sore in my joints, not because of muscle issues) and eating as healthy as I can.  Here is where I find myself stuck, I know exactly what needs to be done, I have been doing this for 14 years, I give advice to other people about what they could try and yet I find myself in a circle of fatigue and needing convenience. There is a balance and finding the balance is the focus, finding the will and strength to push through long enough to find the balance is the struggle.  This is probably why I have been dealing with flares off and on all winter.  Every time I make some headway my fatigue and body get in my way.

So my first step is to get back outside and walk in the fresh air as much as possible. Obviously the temp has to be high 30’s F or greater for this to happen but believe it or not we have had a several day.  While the rest of the US is looking at spring in a couple of weeks it can be end of April before we really experience spring in Maine so I grab any mild day I can and just bundle up and walk.  My body and soul actually feel great and I find myself smiling each walk I finish.  This doesn’t mean I cannot walk inside it just means I prefer not to.  I’m being tested and just have to take each day as a new day and figure out what I need that day. Sometimes I choose correctly, but sometimes I don’t.  Even after all these years I’m still trying to find the balance that works.

HAPPY NEW YEAR

I woke up this morning and realized I’m at 225 days without a flare so this is a great start to the new year. We don’t have to wait until New Year’s Day to make changes in our lives or set goals but it seems easier to do so when it seems the slate has been cleaned and the new year ahead is full of opportunities. I started my day by teaching a yoga class and I started by saying I think we should ease into the new year and what I heard back was no bring it. Most people are tired New Year’s Day, most people haven’t been sleeping enough, eating out of the ordinary, drinking more than they normally would and we should probably all let our bodies rest but instead we wake up on the first day of the new year and want to be challenged. Whether in a spin class, a new facebook challenge, or even a yoga class. We want that push to get us started in the new year right. We all look for this, but what is the drive? I don’t have the answer to this question as I’m still trying to figure out what drives me to do all I do, and try all the things I try. The people around me wonder where my energy comes from, where my drive comes from and what my boundary is. The only thing I know for certain is that I do as much as I can on days that I feel good because it isn’t every day that my body is running at 85% and never at 100% these days, but I do what I do because I can. If you have been with me since the beginning there was a time when I couldn’t walk and with therapy walking 2000 steps a day was a chore and took all day, now I hit 10,000 steps usually by noon, because my legs work, because my body functions. I do hours of yoga because I have the strength in my arms, elbows and wrists. I do what I do because I have worked to get here and part of me is afraid it could be taken away at any moment. I live in the now as best as I can, but there is a lingering fear that my body could and probably will some day long from now not do what it does today. I believe I will always be able to walk and I will always be able to do yoga. That is where I put my focus, but I’m crazy about spinning. I’m crazy about trying new things, and I’m crazy about succeeding.

I don’t know what this New Year will bring, but I am open to all the events that come my way. I know I will not like everything that I’m faced with this year, but I will face anything with calm, peace and grace. I will continue to encourage all of my yoga students to do the same and challenge them as they need and let them rest when they must without judgment. Happy New Year to you all and hope your year brings you health, happiness, and peace and may this year bring you everything you need.

HEALTHY BODY, HEALTHY MIND, HAPPY HOLIDAYS

I haven’t written in a while but have not had a lot to write about. This is a good thing actually because it means that things in my life are relativity in balance. The point of this blog is to tell my story about MCTD but that story is very much the same day after day. I’m at 217 days without a flare which is wonderful and I’m very grateful that my body is feeling good. I am still working out every single day whether it means walking, spinning, or weight training. My yoga practice is a daily adventure whether it is my own practice, preparing for yoga classes, or teaching. My body is strong and most days I feel like my mind is strong. However, this time of year the days are short and it is dark when I go to work and it is dark when I get home. This time of year can be stressful for some people and even bring on depression. We are rushing from place to place, trying to prepare for events, eating and drinking more than we might normally, sleeping less than our bodies need and feeling the stress throughout our bodies and minds. Many people are rushing around so much that their immune systems wear out and illness takes over. I live with MCTD therefore I have a “super-immune system” I don’t worry about the common cold or flu. I don’t worry about picking up germs from the places I go. I enter a gym atmosphere nearly every day, which other than an airport might be one of the germiest places on earth. What I worry about is running my body too hard and putting myself into flare.

This time of year we must make choices, and they won’t all be easy. I thought I would write about some of the things I do in order to stay flare-up free during the holidays and winter months. I am not saying I don’t or won’t flare during the holidays or winter months but I try to keep things quiet in order to stay flare-up free for as long as possible. In Maine our winter started several weeks ago and will take us into April. It is long, it is cold, it is hard to endure sometimes. The way I get through this time is simply one day at a day time. Each day when I wake I take inventory of how I am feeling and then decide what my body needs. I will do something every day even on days I wake up a with some fatigue. I can always walk, as long as my legs will move, I can walk. I find some days it is actually easier to walk than to do yoga. Even if I choose restorative yoga because my body doesn’t always want to bend and move in certain postures.

This time of year we are invited to many events as most of you are, until I was diagnosed with MCTD I rarely said no to things even when I should have. For the last 13 years I say yes to the things that most important to me and my husband. Our families will always be high on the list and if I can help it we do not turn down family events. I also choose 1 evening event a week, this way I’m not out late 2 nights a week. We may do something Friday night and something Sunday during the day but not two late nights. This ensures that my body receives the adequate rest and sleep that it needs. I’m not hyper vigilante about what I eat this time of year except that I make stuff I really want. On Dec 26th that is when I go back to being hyper vigilante with my eating and drinking and let my body fully recover. By New Year’s I am not looking to go out or make resolutions I’m looking to start my new year fresh, clean and re-offer my body everything it needs. Think of it as a back to body basics cleanse.

I meditate a lot this time year. I take minutes in the morning to reflect on the day ahead and things I might have done differently yesterday. Not with anger, or regret, but as ways to learn and do better today. I take minutes to watch my thoughts, make my thoughts cleaner, and notice days when I really don’t have a lot of thoughts. I take this time for me, the time in my life that truly belongs to me, not my family, not my work, not my yoga, not my trainer, not my spin instructor, truly just me, only me. Minutes, not several minutes or an hour, minutes in my day.

This holiday season is going to look different to each and every person, but my goal in this holiday season is to capture the joy, love, peace and calm that it brings. Happy Holidays to all.

THIS THING CALLED LIFE

I realized last night that it has been an entire month since I sent out a blog post and honestly last night was the first time I even thought about it.  This crazy thing called life has gotten in the way.  I don’t mean this in a negative way because even when things are good, life can get in the way.  My husband and I are making a move after 17 years and you just realize how much work is involved.  My body and mind are not able to rest even for a minute these days but because there is always so much to think about, to do, to discuss and to re-evaluate.

This morning was my first time back to weight training in over a month and half.  I figured I was getting my weight training from packing boxes and moving them to storage, but this morning I was reminded that when you don’t use your muscles they will fatigue incredibly quickly.  It won’t take long for the muscle memory to return and I feel strong again and honestly I haven’t run into any boxes I couldn’t lift and haul so I think my strength is there I’m just using it differently.  I also decreased my prednisone to 4.5mg about 3 weeks ago. I wasn’t sure if with the extra fatigue and stress my body would allow the switch from 5 to 4.5 but I can say that things are going pretty well with.  My doctor wanted me to start to ween off since I have been on the Cellcept now for 3 months.  He is hurrying me to get off of it but I figured I would try a small dose reduction and try another one after we move if my body feels ready.

I did some meditating this morning for the first time since we started this whole life change back in April.  Everyone says that this is the time to meditate the most but I was feeling like things had to give, I had to give up many things and that was one of them. I also started walking every morning to conserve some energy to get me through my work days and do yoga whenever I’m teaching but I don’t have my own practice right now. We are about 2 weeks from moving in our new home, starting our new life and making new memories in a new place and I’m hoping that once we get moved in and settled we will find that tranquility life I crave.  I wouldn’t change what is happening right now in our lives I just wish we were at the end of this journey.  Every journey has its struggles and challenges and also its joyous events but all these things cause stress and as we know stress is my biggest trigger and usually the biggest trigger for most of us with autoimmune diseases.  I am at 62 days without a flare today and feeling really good about that.  My husband is constantly reminding me to breath and rest but my hope is to finally find some real sleep in my very near future.

I am too close to the situation to see when I really need to take a breath and relax . I give people advice all the time but it is very hard to take my own advice.  My plan for the next couple of weeks is to get back to my regular routine, walking, my personal yoga practice, weight training and meditation so this morning I was able to get my weight training session and meditation session in. That felt really good.

WEEKLY STATS

This was a shocking week because it felt like I never had a chance to stop and rest but that doesn’t mean I was walking now does it.  My brain can be turned on moving fast while my feet stay planted.  I also did hours of yoga over the weekend which doesn’t gain me any steps

 

Weekly – 57,818

Daily average – 8,260

Miles – 22.31

Floors – 133

WEEKLY STATS

New month and finally I see a little spring on the horizon.  We are coming off one of the warmest winters on record that we have had in Maine so honestly I had spring on my mind back in Dec. My husband has already gotten out the golf clubs and ready to hit balls as soon as possible. It is true that a couple of our golf courses are opened but it is muddy, wet and really not warm enough just yet.  I am hoping to start walking outside again very soon and ticking up my step count while taking in fresh air.

 

Weekly – 72,817

Daily – 10,402

Miles – 28.36

Floors – 133