I haven’t written in a while but have not had a lot to write about. This is a good thing actually because it means that things in my life are relativity in balance. The point of this blog is to tell my story about MCTD but that story is very much the same day after day. I’m at 217 days without a flare which is wonderful and I’m very grateful that my body is feeling good. I am still working out every single day whether it means walking, spinning, or weight training. My yoga practice is a daily adventure whether it is my own practice, preparing for yoga classes, or teaching. My body is strong and most days I feel like my mind is strong. However, this time of year the days are short and it is dark when I go to work and it is dark when I get home. This time of year can be stressful for some people and even bring on depression. We are rushing from place to place, trying to prepare for events, eating and drinking more than we might normally, sleeping less than our bodies need and feeling the stress throughout our bodies and minds. Many people are rushing around so much that their immune systems wear out and illness takes over. I live with MCTD therefore I have a “super-immune system” I don’t worry about the common cold or flu. I don’t worry about picking up germs from the places I go. I enter a gym atmosphere nearly every day, which other than an airport might be one of the germiest places on earth. What I worry about is running my body too hard and putting myself into flare.

This time of year we must make choices, and they won’t all be easy. I thought I would write about some of the things I do in order to stay flare-up free during the holidays and winter months. I am not saying I don’t or won’t flare during the holidays or winter months but I try to keep things quiet in order to stay flare-up free for as long as possible. In Maine our winter started several weeks ago and will take us into April. It is long, it is cold, it is hard to endure sometimes. The way I get through this time is simply one day at a day time. Each day when I wake I take inventory of how I am feeling and then decide what my body needs. I will do something every day even on days I wake up a with some fatigue. I can always walk, as long as my legs will move, I can walk. I find some days it is actually easier to walk than to do yoga. Even if I choose restorative yoga because my body doesn’t always want to bend and move in certain postures.

This time of year we are invited to many events as most of you are, until I was diagnosed with MCTD I rarely said no to things even when I should have. For the last 13 years I say yes to the things that most important to me and my husband. Our families will always be high on the list and if I can help it we do not turn down family events. I also choose 1 evening event a week, this way I’m not out late 2 nights a week. We may do something Friday night and something Sunday during the day but not two late nights. This ensures that my body receives the adequate rest and sleep that it needs. I’m not hyper vigilante about what I eat this time of year except that I make stuff I really want. On Dec 26th that is when I go back to being hyper vigilante with my eating and drinking and let my body fully recover. By New Year’s I am not looking to go out or make resolutions I’m looking to start my new year fresh, clean and re-offer my body everything it needs. Think of it as a back to body basics cleanse.

I meditate a lot this time year. I take minutes in the morning to reflect on the day ahead and things I might have done differently yesterday. Not with anger, or regret, but as ways to learn and do better today. I take minutes to watch my thoughts, make my thoughts cleaner, and notice days when I really don’t have a lot of thoughts. I take this time for me, the time in my life that truly belongs to me, not my family, not my work, not my yoga, not my trainer, not my spin instructor, truly just me, only me. Minutes, not several minutes or an hour, minutes in my day.

This holiday season is going to look different to each and every person, but my goal in this holiday season is to capture the joy, love, peace and calm that it brings. Happy Holidays to all.



  1. jodiebodie January 7, 2017 at 3:56 am Reply

    I love the holiday period to take time out from the pressures of daily life. It is the one time of year where people go away, offices and clinics shut down for holidays, school is out and I can follow the needs of my body above the needs of the clock or anything or anyone else.
    This is the time to catch up on rest but the biggest problem is if I sleep too much or if the regular routine gets too far off kilter; e.g. late nights, extra socialising etc. There’s a lot to be said for routines in keeping one’s health stable.
    You use this time of year as a “body basics cleanse” and I use it as a “rest and recharge”. I make a commitment to not make any commitments for at least a week or two, keeping each day free and ready for any spontaneous possibility but the best part is simple peace and quiet with my immediate family and no external demands to stress the body.
    Happy Holidays, Nicole.

    • mevsmctd January 7, 2017 at 2:47 pm Reply

      JodiVery well said and is a perfect way to end one year and start a new year.  Hope this year is full of good health for you.  

      From: Me vs Mixed Connective Tissue Disease To: Sent: Friday, January 6, 2017 10:56 PM Subject: [Me vs Mixed Connective Tissue Disease] Comment: “HEALTHY BODY, HEALTHY MIND, HAPPY HOLIDAYS” #yiv4181184933 a:hover {color:red;}#yiv4181184933 a {text-decoration:none;color:#0088cc;}#yiv4181184933 a.yiv4181184933primaryactionlink:link, #yiv4181184933 a.yiv4181184933primaryactionlink:visited {background-color:#2585B2;color:#fff;}#yiv4181184933 a.yiv4181184933primaryactionlink:hover, #yiv4181184933 a.yiv4181184933primaryactionlink:active {background-color:#11729E;color:#fff;}#yiv4181184933 | | |

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