I just posted this week that I was active, energized and feeling good, and honestly I was. We went away for the weekend and came home feeling tired but that is not unusual. By Tuesday of this week my hair felt weird, my skin hurt and my body is very achy. My husband is not feeling that great either and contributes it to the gluten we ate this past weekend which was way more than we should have and would ever do even on a week away type trip. Even when we travel we are fairly careful of our foods and let loose but don’t go overboard. This past weekend we didn’t give it any thought at all what we were eating because we were having fun, with family and it was only a couple of day. I’m not even saying my feeling like I’m on the verge of a flare is even weekend related. We were in and out of airports and quite frankly you can pick up anything and everything in airports so my body may be trying to fight off something.

The last couple of days I have stuck to walking and yoga but will attempt to try some spinning and biking again. I also have a fun yoga day planned on Sunday which is “yoga in the park” sponsored by LL Bean’s so I want to be tip top for that event and hoping this feeling is gone by then. It has been 283 since my last full fledge flare and although I don’t feel exactly myself I’m not in full flare and hoping I can keep it at bay. When I really flare my body is in such pain that bed is the only place to be and then it takes me several days to get through that now. Back in the early days of MCTD I would flare more frequently but they would be over quickly. Now my flares are spread out over several months and it takes longer to get back to base-line. I’m not sure that I really prefer one way over the other honestly and just wish I could pin point my triggers and make sure my body didn’t flare.

Since being home and not feeling great I have gone to juicing, smoothies and a little nutritious food to try and let my body rest and recover without over stressing it with heavy foods even if they are good for me. I’m wondering if there is benefit to a “cleanse” with little food, lots of liquid and an over abundance of walking and yoga. I have no science based facts and really cannot tell what my body likes, needs or wants when teetering on a flare but I’m resisting the full flare as much as possible because I don’t have the time to stop completely unless my body forces me to which has not happened yet. My hope is I get to 284 days without a flare and as I write this and think about it, spinning is not the right decision. In a matter of moments I have decided to continue walking today and do my yoga tonight to try and keep myself on point and reach that 284 mark.


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  1. jodiebodie June 27, 2015 at 3:00 am Reply

    I hope your body will overcome the challenge without getting to ‘full flare’. Interesting that you used to have frequent flares that were over quickly. I am finding that I will suffer a ‘partial flare’ every month and tend to be running in that mode for a week or two with a couple of respite weeks in between. My Dr warned that flares will become less frequent but more severe when they hit and this has been the case for me.
    When I am sick, I find it hard to eat because my digestive tract seems to shut down so I have a stock of home-made soups on standby in the freezer for those times. During a flare I find soups, smoothies and liquid nutrition more effective than regular foods so your notion of ‘cleansing’ with lots of liquids makes sense.
    Take care x

    • mevsmctd June 28, 2015 at 1:15 pm Reply

      Hello Jodie
      I find it interesting that your doctor mentioned that the flares would last longer the more infrequent they become and wish my doctor would have had that same insight as it may have helped me figure out how to readjust a little bit better. Love the idea of soup as well since that will be a warming effect and may help settle everything down. Thank you for the info as I have made a pot of soup for this rainy cold day and will be enjoying it.

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