Today I have been 1 year without a flare and I have so many things running through my mind. I wonder where my next year will take me and I’m hoping I can continue this path of being flare-up free. I have been working so hard on my fitness and getting stronger and I wonder if that is the key for me. Could it also be that menopause has stopped the influx of hormones which in turn has quieted my MCTD? I have so many questions and not a lot of answers. My family wants to hear what I think is the reason behind being flare-up free and although I don’t know for sure I have a theory. Before MCTD I was not an active person by nature and thus didn’t exercise. When MCTD came into life the pain was so bad I couldn’t walk and my Rheumy just told me to start walking and use a pedometer to ensure I was getting 1500 steps a day which is not much but felt like too many back then. As time went on and I became more fit and exercise became a regular routine in my life I spend hours at the gym on the elliptical, in classes, walking outside whenever possible but not much weight training. I also didn’t understand how to fuel my body for exercise to that extent so I was burning major calories but not taking enough in and causing stress to my body. Literally I was causing a trifecta of inflammation to my body every day and ultimately would flare. My Rheumy wanted some weight training built into my routine each time I did weight training and while my muscles healed my body would flare so it didn’t take long for me to let the weight train slip by and stop altogether.
I did this for many years and would keep a journal of how many days I was flare-up free and kept waiting to reach 90 days. I used Bikram yoga for 9 years as a way to keep my body loose and enjoy the heat which my body loves but in truth that is a stressor as well and causes inflammation but I did finally reach 90 days without a flare and decided I need to figure out how to get more of those 90 day periods. I actually got to 180 days but then went into flare just by being too cold. Temperatures, my fragile immune system, and the added daily inflammation were too much for my body to endure so I flared. Once I flare it takes a long time to get back to a long period being flare-up free again so I struggled. It wasn’t until a couple of years ago when I embarked on the Paleo lifestyle and incorporated walking, Bikram yoga and weight training into my life while eating real food. I am not 100% Paleo today and although there are days I wish I were I’m too emotionally attached to food to be 100% so I live in a 70/30 realm and try to keep my diet as clean as possible. The weight training has really proven to be beneficial and I feel stronger than I ever have before. I started eating meat the same time Paleo came into my life and I think that combo of high fat protein, exercise and many more calories is again the trifecta I need to keep my body strong. I know I still have inflammation because my test results show it but I don’t feel it like I used to.
The last decade + MCTD has been my identity and write this blog because of my MCTD but now I don’t have much to say about it and I don’t see MCTD as an identity for me. I know I have it, but I don’t feel it and it doesn’t stop me from doing what I want.
I’m trying so many things and doing so much but keeping my core keys in tact which is eating enough. This is the most important thing I can do. In truth I have gained 10 pounds in the last 1.5 years as I have added the weight training, meat eating, and more calories into my life but according to my trainer I need this and perhaps one day I won’t care what the scale says or even have the urge to look at the scale but right now I look and sigh and then remember that I have gone a year without a flare. Sure I could get extreme with diet and exercise but to what end result? My fear would be a flare which I’m not willing to do.
I just keep doing what my trainer asks of me and find myself lifting heavier each week, feeling stronger each week and watching the passing days without flares increase. Now if only I felt so good about my golf game!!