84 Asanas

It has been a while since I have written a post, so I do have some catching up to do and will try to be better about more regular posts. Life is something that just gets in the way sometimes and that seems to be happening to me right now.  However, with that said I am 223 days without a flare as of today and I couldn’t be happier about. I don’t know exactly what is helping and what the real cause of my many flare-up free days are based on but I do know that I am feeling strong, energized, and capable of much more now than ever before. I’m taking advantage of this new found energy and trying some new things.

I participated in a 2 hour 84 Asana class that went through the Bikram poses but also added some sequence flows and advanced postures. It was incredibly fun and showed me how far I have come with my yoga practice.  I enjoy the sequence and flow very much but really enjoy the power of balance in the Bikram postures. I also enjoy the stretching and concentration of the Bikram practice but adding a few sequence flows really gave it a pumped up energy that was good for the joints and the soul.

I have also signed up to ride in the Tour de Cure this year and although I have never been a bike rider and really I’m not very good on a bike I feel like I want to do this ride to help find a cure for diabetes. Honestly I would never get off a bike if they could find a cure for MCTD, cancer, diabetes and other autoimmune diseases but if we can make a connection somewhere then science might lend it to curing all kinds of diseases.  I recently just learned about prednisone induced diabetes and I found myself feeling very frustrated because I have been taking this medication for 10 years and I didn’t know anything about it.  In all fairness 10 years ago if someone told me about it I might have heard it but clearly didn’t process it.  However, over the last 10 years I have become an amateur medical student for myself and this has never popped up for me and I come across a lot of information in a day, week, month and even year.  I’m so surprised that I haven’t heard about this and now I wonder what it really means and how it is diagnosed.  As you can imagine I have a new focus and now that I know this is possible I want all the information I can get on this subject.

I have been fortunate enough to not have diabetes enter my life but how much prednisone does it take to induce diabetes? I don’t know but I will find out. I am riding for a specific cause but I’m also riding for people, people I love, people that have diseases, people that have watched me struggle at times in my life but now get to see ride a bike for 50 miles.  I won’t promise to be graceful but I do promise to finish. Part of the winter training is spinning inside and how I love spinning.  Over the years I have been afraid to spin and ride a bike but today I’m much stronger than I have been in the past and ready to climb out of my comfort zone and find fun in life outside the gym.

I am still doing my Insanity Class 3 days a week and meeting with my trainer for weight training so the gym life is not over for me but being able to try new things is really liberating.  I recognize my active life is not for everyone and my husband and I need something to do together so we have recently started taking golf lessons.  This is a way for us to be together, I get to stay active, he gets to incorporate some activity and we get to support each other in a new area for both of us. Its times like this I’m as thankful for this new found energy as I don’t think I could keep up with myself otherwise.

 

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2 thoughts on “84 Asanas

  1. maura February 15, 2014 at 2:38 pm Reply

    Hi , I am a 44 year old mom who just got diagnosed with this MCTD. I have not been the same since Nov. when I had shingles. I have a 12 year old daughter who needs me and I have to be better for her. I used to play a LOT of tennis but now it has been hard to breathe during the tennis. I am most concrned about the breathing because I will try to manage all the other stuff. I do not want to get down-it does no good. But no one seems to understand. My sister was like “so anyone can just be walking around with this and not know it so just go on with your day.” I was like YOU KNOW when you have it because you feel like garbage and everyone does not deal with that just walking around. I hope the Dr’s can find help and reverse our RNP’s . But most of all I feel on my own.

    • mevsmctd February 16, 2014 at 11:51 am Reply

      Hello Maura
      Thank you for taking the time to write and tell your story. If you have just been diagnosed your journey has just started and although you may want and need answers right now sometimes that isn’t possible when figuring out autoimmune diseases. MCTD is very broad and many of us experience different symptoms, the pulmonary issues you are facing are part of the MCTD and can be managed once you figure out all your details. Pulmonary issues take time to figure out and very serious, find a doctor you trust and work well with as you figure out the answers to all your questions. As far as tennis and other activity, I’m sure your doctor will say take it easy until they figure out if there is any damage done and if all else fails just walk.
      Your daughter needs you to be healthy and part of that health is managing your MCTD and although you feel alone there are many people out there just like you. Family and friends can be your best support but only when they know how to help you. Your sister may just not understand because you may not fully understand yet yourself what is happening, what your long term prognosis is and how managing this disease fits into the lives of you and your daughter. With time, knowledge, and research you will find the path that is right for you. I wish you the best of luck in your journey.

      Nicole

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